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She is 5 years old and is such a loveable little girl. My wonderful husband is Jim and we have been married for 6 years. Karly is our special little girl.
Our 2014 National Conference Sponsors. Welcome to the 4P- Support Group. 2014 National Conference GOLD Level Sponsors. 2014 National Conference Gold Level Sponsors. 2014 National Conference SILVER Level Sponsors. Meet our children with Wolf-Hirschhorn and 4p related conditions. 2014 National Conference Harrisburg, PA Brochure and Registration.
Ellie has a rare genetic syndrome called Wolf-Hirschhorn syndrome. This is the result of a genetic error on chromosome 4. It is estimated to occur in 1 in 50,000 births. Ellie also has right eye anophthalmia, which means she was born without her right eye. Ellies life has its ups and downs, but she continually amazes us and makes us smile. Being happy doesnt mean that everything is perfect. It means that you have decided to look beyond the imperfections. Sunday, December 29, 2013.
Friday, March 24, 2017. Heather and I decided to take the boys back to Colorado by ourselves. Waiting for snowboard school to start. Super excited to successfully go down the mini slope! .
Friday, July 19, 2013. It has been a really long time since I have had a chance to sit down and blog about our little pickle. Time has gotten away from me. School coming to and end and summer beginning has had me in a whirlwind of work, appointments, vacation and just plain fun. I have been wanted to post an update for quite some time because so much has happened. Dylan can hold his own sippy cup and drink on his own. He does tend to dribble and makes little wet spots on th.
Tuesday, July 10, 2012. It was so much fun showing Evan pictures of his baby sister. I loved seeing Kylie moving all around. She liked to have her feet up by her head just like her brother did. It was funny, Kylie had her mouth open a lot and even stuck out her tongue! Here of some pictures of our princess. Our first glace at Kylie! Kylie taking a little nap.
The events of our life from my perspective. Inspired by a little boy. Sunday, October 6, 2013. Go Ty Go makes a move. Monday, April 8, 2013. You Tube video of Tyler during PT. Wednesday, March 6, 2013.
I feel for her very much. So thankful to be sober tonight and not creating new regrets, new things to make amends for, new holes to dig out of.
Father, all-powerful and ever-living God, we do well always and everywhere to give you thanks. Tuesday, August 11, 2009. I may not be able to respond in writing very often, but I will always respond in prayer. Peace be with you! Sunday, August 9, 2009. If you know me well, you must have known this was coming. Monday, July 27, 2009.
Thankful observations on art, faith and life. Forging Iron into a Song of Defiance. To listen to or read his September 8th sermon.
This blog contains daily posts on what I and members of my family are thankful for. The purpose of this blog is for my family to grow closer to the Almighty by expressing the things we are thankful for. Houston, Texas, United States. Thankful For The United States. Thankful for Eight Wonderful Years. Thankful for the NBA Playoffs. Thankful for my Wife Jill. I am very thankful we finished our Taxes.
Includes unlimited streaming via the free Bandcamp app, plus high-quality download in MP3, FLAC and more. Released June 1, 2011. Ryan Bernemann -Bass, accordion, backing vocals. Jon Eric -Banjo on Tell Me. Andy Fleming -Vocals on Blessings I Receive. Brad Rieks -Mandolin on Blessings I Receive.