Ellies Story
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She is 5 years old and is such a loveable little girl. My wonderful husband is Jim and we have been married for 6 years. Karly is our special little girl.
Friday, March 24, 2017. Heather and I decided to take the boys back to Colorado by ourselves. Waiting for snowboard school to start. Super excited to successfully go down the mini slope! .
Friday, July 19, 2013. It has been a really long time since I have had a chance to sit down and blog about our little pickle. Time has gotten away from me. School coming to and end and summer beginning has had me in a whirlwind of work, appointments, vacation and just plain fun. I have been wanted to post an update for quite some time because so much has happened. Dylan can hold his own sippy cup and drink on his own. He does tend to dribble and makes little wet spots on th.
My daughter, Holly, has a condition called Hydranencephaly. This is a journal of us, our lives and her journey. Holly Grace - birth story. Up and downs of the last few months. Anyway, in September 2011 she had her PEG inserted and her hips released. She recovered really well from that. That was until about a month ago. I had sent L home for some slee.
Thursday, January 2, 2014. I know it has been an extremely long time since I have written. Like 2 years long! So many times I have wanted to sit down and quickly type something up but even a few minutes seems hard to come by sometimes. Today, I got the ultimate surge of blogging energy brought on by our sweet Tanner speaking his first word. He is a truly amazing child. He continues to beat the odds! Friday, October 28, 2011.
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Ellie has a rare genetic syndrome called Wolf-Hirschhorn syndrome. This is the result of a genetic error on chromosome 4. It is estimated to occur in 1 in 50,000 births. Ellie also has right eye anophthalmia, which means she was born without her right eye. Ellies life has its ups and downs, but she continually amazes us and makes us smile. This is her storyCONTENT
This web page ellieedayoung.blogspot.com states the following, "Ellie has a rare genetic syndrome called Wolf-Hirschhorn syndrome." We saw that the webpage said " This is the result of a genetic error on chromosome 4." It also said " It is estimated to occur in 1 in 50,000 births. Ellie also has right eye anophthalmia, which means she was born without her right eye. Ellies life has its ups and downs, but she continually amazes us and makes us smile. Being happy doesnt mean that everything is perfect. It means that you have decided to look beyond the imperfections. Sunday, December 29, 2013."SEEK SIMILAR DOMAINS
As this is the first suggestion when searching for Ellie Edwards on Google, I thought I better tell you that this is a little out of date now. My new blog is here. And this is my website. Though do feel free to have a peruse through this blog too as it documents my final year at uni pretty well. Monday, 7 June 2010. To everyone who saw the show. Tuesday, 18 May 2010. Wednesday, 28 April 2010.
This is the place where you can personalize your profile! By moving, adding and personalizing widgets.
26, live, love and work with animals. trying to decide if they are superior to Fabs or not! Posted 6 years ago. Ldquo;Until death do us part was the pledge. 2 days left to vote.
Sleep all day, and party all night! Things through my eyes. Ser att det fortfarande är OTROLIGT. Många som tittar in här trots att jag numera bloggar under en annan adress. Så som sagt, denna blogg är ett minne blott. Följ mig istället på adressen nedan! Publicerat i 15 and life. Har nu tagit steget att sluta blogga här för att börja om på en annan adress. Så hädanefter hittar ni mig på ellybells. Publicerat i 15 and life.