Ellie has a rare genetic syndrome called Wolf-Hirschhorn syndrome. This is the result of a genetic error on chromosome 4. It is estimated to occur in 1 in 50,000 births. Ellie also has right eye anophthalmia, which means she was born without her right eye. Ellies life has its ups and downs, but she continually amazes us and makes us smile. Being happy doesnt mean that everything is perfect. It means that you have decided to look beyond the imperfections. Sunday, December 29, 2013.

Friday, July 19, 2013. It has been a really long time since I have had a chance to sit down and blog about our little pickle. Time has gotten away from me. School coming to and end and summer beginning has had me in a whirlwind of work, appointments, vacation and just plain fun. I have been wanted to post an update for quite some time because so much has happened. Dylan can hold his own sippy cup and drink on his own. He does tend to dribble and makes little wet spots on th.

Thursday, January 2, 2014. I know it has been an extremely long time since I have written. Like 2 years long! So many times I have wanted to sit down and quickly type something up but even a few minutes seems hard to come by sometimes. Today, I got the ultimate surge of blogging energy brought on by our sweet Tanner speaking his first word. He is a truly amazing child. He continues to beat the odds! Friday, October 28, 2011.