A blog about life as the mom of my extraordinary and medically-complex daughter Esmé can teach us about the evolving understanding of genetics, scientific ethics, and what it means to be human. She is non-verbal, non-ambulatory, and tube-fed. She is also goofy, sweet, adorable, funny. and, at four-years-old, is able to read. PCDH19, SCN8A, and The Cute Syndrome Foundation.

This, dear friends, is my attempt to show you what I like and appreciate. Tuesday, April 23, 2013. Monday, April 22, 2013.

April began in a general feeling of ennui. My parents had left for Europe to visit my sister, and I was feeling lonely and lost. But then on the fourth day of April, things started turning around. I got an interview with ASOS for the Student Editor position I applied for in late March.

When I realised Pancake Day was approaching I had the perfect excuse to make my flour-less, gluten free pancake recipe again. I only attempted them for the first time a few days ago and was genuinely surprised at how easy they were to make. This time I decided to tweek the recipe slightly and add some protein powder.

Retape dans le champ ci-dessous la suite de chiffres et de lettres qui apparaissent dans le cadre ci-contre.