The Cute Syndrome
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Her hands are at her sides, wearing blue bangles. FEATURED BLOG POSTS OR NEEDS. He is smiling and you can see his brown hair.
NG Tube Placement and Verification. Oral, Skin, and Site Care. Feeding Tube Dolls and Stuffed Animals. Bolus, Gravity, and Intermittent Feeds.
A blog about kids with disabilities who kick butt. Wednesday, April 4, 2018. Yesterday I signed Max up for an upcoming Sunday event for youth with disabilities, run by university students. As usual, I felt a rush of gratitude that such events exist. Max has a great time. As sometimes happens, I have to.
Funding PCDH19 and SCN8A Epilepsy Research. White Family WILD for a Cure Fundraiser. You are part of that mission- your donations, volunteer time, and social media support are essential to our momentum. And SCN8A-Help Adeline Find Answers. We believe that the best w.
Monday, July 27, 2015. Yeah, so this happened, too. And with that, officially all three of the Hartley gals wear specs now.
Empowering TinySuperheroes one cape at a time! Tuesday, March 5, 2013. And check out our new blog, new store,. And new Extraordinary TinySuperhero! Wednesday, February 27, 2013. Today is Rare Disease Day. It with someone - the first step to raising awareness. We know there are t.
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A blog about life with an undiagnosed medically complex special needs child.CONTENT
This web page thecutesyndrome.blogspot.com states the following, "A blog about life as the mom of my extraordinary and medically-complex daughter Esmé can teach us about the evolving understanding of genetics, scientific ethics, and what it means to be human." We saw that the webpage said " Esmé has epilepsy, multiple genetic mutations including PCDH19 and SCN8A, and developmental delay." It also said " She is non-verbal, non-ambulatory, and tube-fed. She is also goofy, sweet, adorable, funny. and, at four-years-old, is able to read. PCDH19, SCN8A, and The Cute Syndrome Foundation."SEEK SIMILAR DOMAINS
This, dear friends, is my attempt to show you what I like and appreciate. Tuesday, April 23, 2013. Monday, April 22, 2013.
April began in a general feeling of ennui. My parents had left for Europe to visit my sister, and I was feeling lonely and lost. But then on the fourth day of April, things started turning around. I got an interview with ASOS for the Student Editor position I applied for in late March.
When I realised Pancake Day was approaching I had the perfect excuse to make my flour-less, gluten free pancake recipe again. I only attempted them for the first time a few days ago and was genuinely surprised at how easy they were to make. This time I decided to tweek the recipe slightly and add some protein powder.
Retape dans le champ ci-dessous la suite de chiffres et de lettres qui apparaissent dans le cadre ci-contre.
A certain darkness is needed to see the stars.