Feeding Raya
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The night time check-in routine was Successful.
A blog about life as the mom of my extraordinary and medically-complex daughter Esmé can teach us about the evolving understanding of genetics, scientific ethics, and what it means to be human. She is non-verbal, non-ambulatory, and tube-fed. She is also goofy, sweet, adorable, funny. and, at four-years-old, is able to read. PCDH19, SCN8A, and The Cute Syndrome Foundation.
Monday, September 3, 2012. Sushi Most people associate that with chunks of raw fish and rice. I do not like raw fish but I like sushi. I like sushi with shrimp, vegetables, crab, and fruit. All mixed up and ready to eat! Monday, August 27, 2012. A Book for Tube Fed Children. J asking questions about one of the pictures showing a bolus syringe and feeding pump.
Wednesday, December 24, 2014. Your digital Christmas card 2014. Time to get some life insurance! Congenital .
There are no words to describe the immense power of remembering how good God was. It was all so incredible. After a day of tests and liquids only diet, Timo is back home and asleep in his crib. He was in better spirits today but seeme.
Wednesday, August 12, 2015. Time is Relative and Differences will be Noticed. This year I have figured out just how true that statement is. It has been nearly four years since Noah was born, Maddy and Ellie just turned one. Tuesday, February 3, 2015. When you have an immobile toddler you tend to get creative when trying to find .
10 dingen die je als ouder moet weten over sondevoeding. 15 hele dagen sinds de laatste PEG-plaatsing voordat ze het heeft begeven. Of verstopt is geraakt in dit geval. De PEG lijkt het tot nu toe niet langer vol tr houden dan de button. Gelukkig blijft hij beter zitten maar als de slang verstopt raakt hebben we er natuurlijk niks aan dat hij goed blijft zitten.
Tuesday, January 3, 2017. But, I still wanted to save money so I wracked my brain and came up with a different way to do it. For our 10th anniversary last September.
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ALL information on this website is the intellectual property of the blogwebsite owner! Unauthorized use is prohibited. If you see something youd like to repost or share, please email me and ask first. This includes but is not limited to all text, information, and photos on the blog. Thank you! Friday, May 15, 2015. Just a meme for a craptastic Friday. And if you were not a child of the 90s and dont recognize the reference, please just ignore me and go on your merry way and let me laugh at my lame joke.CONTENT
This web page agirlandhertube.blogspot.com states the following, "ALL information on this website is the intellectual property of the blogwebsite owner! Unauthorized use is prohibited." We saw that the webpage said " If you see something youd like to repost or share, please email me and ask first." It also said " This includes but is not limited to all text, information, and photos on the blog. Thank you! Friday, May 15, 2015. Just a meme for a craptastic Friday. And if you were not a child of the 90s and dont recognize the reference, please just ignore me and go on your merry way and let me laugh at my lame joke."SEEK SIMILAR DOMAINS
Why am i doing this? Sunday, July 31, 2011. Thank you for following my journey into primal living over the last year. please join me in my new big adventure . So, the new blog will be the tales of our new life. with blood, sweat and tears. and sunshine, dirt, an airstream and love . Monday, June 20, 2011.
I might appear nice or slutty. but i dun care if u judge me. by bein judgemental, ure nothing better than me. You dont have to like me. You dont have to hate me. Monday, November 8, 2010. It has been three years Im feeling this and not a single thing I like about these things.
Was successfully added to your cart. Educate a woman; you educate a generation. The mind is not a vessel to be filled, but a fire to be kindled. When you know better you do better. Knowledge will bring you the opportunity to make a difference. Nick Kristof, Half the Sky.
Sunday, December 7, 2014. My total is now to 614 items since 2009. For a total of 39 items donated in December 2014. Monday, September 29, 2014.
Grow a Pair, Dude. Frankly, this post applies to both girls and guys. If they were simply jerks, we could find it in us to simply disengage. But time-wasters? Picard Shenanigans by Bthauronite.