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These are highlights of some of the bravest children I know! Monday, March 7, 2011. And what she had started with. Then suddenly Denika was found to have a second Ganglioneuroblastoma Tumor - this one in her chest. Still Denika has battled on. Denika has spent most of the last year in hospitals in preparation for these treatments. Not to mention three surgeries just for the PICC line.
Thursday, June 29, 2017. We finally decided to have the Spinal Fusion. Haven needed to have her spine fused from C3 - L4. This was to help to sharp curves in her spine caused by growth hormone injections she had been taking for a few years. Grandma and grandpa came out to help with Haven and work with her in getting back on her feet. They were great help with the PT guy and gal.
Thursday, October 22, 2009. We have a few more that we have met over the past year. I will be updating tonight! Wednesday, April 1, 2009. The other day I was so excited to get an email from Julie. I wanted to share with you a little bit of Mason from her email. Mason age 4, was diagnosed with ROHHAD in Aug.
Friday, February 5, 2010. Thursday, January 14, 2010. Sunday, January 10, 2010. Not a whole lot to say about these pictures - just boys being silly. I will say this though, Ian is a hoot, he wanted me to take lots of pictures of his different poses. I am reminded of the previous post where I said that Ian was ALL boy! Spiderman - Climbing the Walls.
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Tuesday, January 7, 2014. Recently, as I was checking in on our fellow families with kids suffering with ROHHAD on one of our Facebook group pages I saw my name tagged in a post. It was a news post about a little girl being denied a gastric bypass surgery due to her age. Here is a link to that original story I saw Obese, but starving Girl, 12, denied weight-loss surgery. Alexis Shapiro beforeafter hypothalamus damage. Josh age 8 in Feb 2005, days before going into respiratory failure. Since none o.CONTENT
This web page vwootenworld.blogspot.com states the following, "Tuesday, January 7, 2014." We saw that the webpage said " Recently, as I was checking in on our fellow families with kids suffering with ROHHAD on one of our Facebook group pages I saw my name tagged in a post." It also said " It was a news post about a little girl being denied a gastric bypass surgery due to her age. Here is a link to that original story I saw Obese, but starving Girl, 12, denied weight-loss surgery. Alexis Shapiro beforeafter hypothalamus damage. Josh age 8 in Feb 2005, days before going into respiratory failure."SEEK SIMILAR DOMAINS
Friday, July 29, 2011. Pioneer Boot Camp was an awesome experience. I am thankful that we were given the opportunity to go.
Welcome and thanks to the strong panel. That among other things, proves to me this magnesium is working as it should. A Breakdown Of No-Fuss Travel Tactics.
Explore, Discover, Create! Instructional Technology Blog and News Archive. Web 20 Tools for Teaching and Learning. Here First, create a New Page with your name in the title. Next copy and paste and or type in your review. This entry was posted in Uncategorized. Using ARC GIS Explorer to report Dissolved Oxygen concentrations in the Lafayette Reservoir.
Wednesday, July 29, 2009. A repost of the classic incident and phone call involving Tim Watkins for all those who missed it the first time. Thanks for being a good sport Ms. Monday, July 27, 2009. Every End Is A New Beginning.
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