Vegards life with CDKL5
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Vegards life with CDKL5. A blog about Vegards journey towards the CDKL5 disorder diagnosis. Monday, January 31, 2011. Vegard is a 7 year old boy from Norway. From infancy Vegard has suffered from Infantile SpasmsWest Syndrome. The fight for finding out why has been long and hard - but finally, after a five year struggle we got the diagnosis. Vegard has a rare genetic disorder in Exon 8 in the CDKL5 gene. So far Vegard is the only boy registered in the world with a disorder in Exon 8. Now Vegard is hom.CONTENT
This web page vegardslife.blogspot.com states the following, "A blog about Vegards journey towards the CDKL5 disorder diagnosis." We saw that the webpage said " Monday, January 31, 2011." It also said " Vegard is a 7 year old boy from Norway. From infancy Vegard has suffered from Infantile SpasmsWest Syndrome. The fight for finding out why has been long and hard - but finally, after a five year struggle we got the diagnosis. Vegard has a rare genetic disorder in Exon 8 in the CDKL5 gene. So far Vegard is the only boy registered in the world with a disorder in Exon 8."SEEK SIMILAR DOMAINS
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