Monday, November 1, 2010. It has been sometime since my last post. I hope it will be a source of information for parents with a new diagnosis of Emanuel Syndrome for their child. I will post when site is up. Saturday, April 3, 2010. I wanted to share some photos of Gracie and my Granddaughter Aliviah. Gracie is 2 and a half and Aliviah is 14 mo. Monday, January 25, 2010.

Sunday, September 8, 2013. Grace gets a new necklace, sort of. Life gets busy and I forget to write but it is about time for an update. So he left, letting us know Grace was stable and they would be bringing her up to the PICU with her breathing tube. We were determined to get home by Christmas. And we did, we finally came home four days before! Placing a trach w.

Wednesday, September 26, 2012. So Makily is now 43 lbs. Took the doctor about eight months to diagnose me. Type II has longer, deeper depressive episodes whereas Type I is more up and down from mania to depression. She upped my Abilify to 15 mg and went down on my Effexor to 150 mg. I feel better since the meds were changed. I have lots of hurdles. Tuesday, July 24, 2012. She had watched me grow up with N.

I created this blog so that I could talk about what it is like being the father of a severly disabled chid. Friday, June 19, 2009. We are always told not to judge others until we have been in their shoes. There are people who are going through a very difficult time with their disabled children in ways that I have yet to deal with. Therefore I am going to judge people familiar to me who have been in the same shoes as I have. These people did the wrong thing. Thursday, June 18, 2009. I simply was not an em.