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Stay up to date - subscribe to our newsletter. While the recessive form of the disease is most common among Jews, Persians and the Japanese community, HIBM affects people around the world. There is currently no treatment or cure.
Information, Updates and Studies. Information, Updates and Studies. Give a little to make a big impact. Help make our community a better place. Be where the action is! Check out our calendar for upcoming events. Blog and Photos on NDF Black and White Ball, 2015.
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Tara Talks GNE MyopathyDESCRIPTION
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This web page taratalksgnemyopathy.blogspot.com states the following, "This is a forum where I will discuss the challenges and insights I encounter on my journey in living with a progressively weakening disease called GNE Myopathy also known as Hereditary Inclusion Body Myopathy HIBM." We saw that the webpage said " I will invite others to share their stories, tips, and comments." It also said " I will also discuss potential treatments, clinical trials, current research, and ways of supporting each other on this interesting and challenging journey. Friday, December 30, 2016."SEEK SIMILAR DOMAINS
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