The drive to his residential facility is about two hours, it makes for a long day. A long, horrible day. The law says that every child with a disability is to be educated as much as possible with their non-disabled peers. Blessed is the True Judge.

Updates on our 28- weeker preemie twins and raising a child with cerebral palsy.

Monday, October 10, 2011. Birthday and walk around 5 years old. These were my goals for Kai. Kai was going to crawl and walk. I was sure of it. He was just going to be farther behind the curve than most kids. We began weekly therapy visits and I worked with Kai every day I could.

Removing the fence around social barriers one post at a time. Why I blog without a name. Enter your email address to follow this blog and receive notifications of new posts by email. Music Therapy and other useful info.

Whatever their gifts or limitations, people are all bound together by a common humanity. Wednesday, January 14, 2015. The lecturer was a guy in his thirties with autism.

A misguided choice for all parents of children with severe disabilities. Wednesday, September 25, 2013. Who is taking care of Ashley? Hoping to point out the deep flaws in thinking and information that exist in what the parents have put forth. I will look at them more carefully afterward.

Tuesday, March 31, 2015. So, what does this tell us? No Will we move to transfusion dependency? Bone marrow .

Joey was born with hypotonia and as he has grown he has also been diagnosed as Failure to Thrive and with Hypotonic Cerebral Palsy. 5 years old he functions at a 7-8 month-old level in almost every way. Despite his challenges Joey teaches us something new every day and has changed our lives for the better. Wednesday, April 21, 2010. This is the first therapist. We still have a long way to go to feeding independence as he is not fe.