ourpreciousamber blogspot.com
Precious Amber
May 8th 2012, our precious baby Amber was diagnosed at 10-months-old with Niemann-Pick Disease Type A. It is one of approximately fifty known Lysosomal Storage Disorders. It is a rare, fatal, genetic disorder with no cure. She is currently the only child in Australasia with this condition. We wish to share her invaluable life experiences with as many people as possible.
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linzer, party of five
Saturday, August 9, 2014. Many hours of most days I am able to seem normal. There are the stolen moments during those days, when seeming, acting and feeling normal is simply not possible; moments which are generally contained to my alone time.
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Precious AmberDESCRIPTION
May 8th 2012, our precious baby Amber was diagnosed at 10-months-old with Niemann-Pick Disease Type A. It is one of approximately fifty known Lysosomal Storage Disorders. It is a rare, fatal, genetic disorder with no cure. She is currently the only child in Australasia with this condition. We wish to share her invaluable life experiences with as many people as possible.CONTENT
This web page ourpreciousamber.blogspot.com states the following, "May 8th 2012, our precious baby Amber was diagnosed at 10-months-old with Niemann-Pick Disease Type A." We saw that the webpage said " It is one of approximately fifty known Lysosomal Storage Disorders." It also said " It is a rare, fatal, genetic disorder with no cure. She is currently the only child in Australasia with this condition. We wish to share her invaluable life experiences with as many people as possible. Thursday, 6 June 2013. Check out the new belly accessory! Ambers gastro tube site is healing well with just t."SEEK SIMILAR DOMAINS
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