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Living with OsteoPETrosis ADO - From a Familys PerspectiveDESCRIPTION
This blog will be used to describe the trials, tribulations, ups and downs, sadness and happiness that we experience relating to Osteopetrosis. We are advocates for current and future research to help find a cure for this disease AKA OsteoATROCIOUS.CONTENT
This web page osteopetrosis.blogspot.com states the following, "Monday, February 9, 2015." We saw that the webpage said " Kaleb went to the ocean in September for the first time." It also said "became a 5 time medal winner at the state competitions in track. went skiing last weekend and has his next goal of skydiving. Sorry for the brag post but I have to share with someone. how much in awe I am of this young man. If I die tomorrow, my life was good. Friday, November 1, 2013. Heres to a great remainder of 2013. Sending healthy thoughts to each and every one of you. Tuesday, July 30, 2013."