npatimeline blogspot.com

Mias NPA Timeline

Thursday, November 3, 2011. Our first child, a beautiful girl named Mia, had a terminal genetic disorder called Niemann-Pick Disease, Type A. When she was diagnosed, we couldnt find much information about how the disease would progress - especially in the later stages. This website is a brief timeline of Mias life as it related to her condition, which will hopefully provide some insight for parents whose children are diagnosed with NPA. Mia was born on May 31st, 2009. She was small but healthy. Knowing.

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LINKS TO WEB SITE

National Niemann-Pick Disease Foundation, IncPromoting Research Supporting Families

Enzyme Replacement Therapy Type B. NNPDF Presentations on Cyclodextrin in NPC Disease. Histone Deacetylase Inhibitor HDACi Vorinostat. The progression of Niemann-Pick Disease. Family Websites, Videos, Photos and Chronicles. Shop and Support the NNPDF.

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Mias NPA Timeline

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Thursday, November 3, 2011. Our first child, a beautiful girl named Mia, had a terminal genetic disorder called Niemann-Pick Disease, Type A. When she was diagnosed, we couldnt find much information about how the disease would progress - especially in the later stages. This website is a brief timeline of Mias life as it related to her condition, which will hopefully provide some insight for parents whose children are diagnosed with NPA. Mia was born on May 31st, 2009. She was small but healthy. Knowing.

CONTENT

This web page npatimeline.blogspot.com states the following, "Thursday, November 3, 2011." We saw that the webpage said " Our first child, a beautiful girl named Mia, had a terminal genetic disorder called Niemann-Pick Disease, Type A." It also said " When she was diagnosed, we couldnt find much information about how the disease would progress - especially in the later stages. This website is a brief timeline of Mias life as it related to her condition, which will hopefully provide some insight for parents whose children are diagnosed with NPA. Mia was born on May 31st, 2009. She was small but healthy."

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