Friday, September 9, 2016. She will be there with her friend Scarlett and sometimes a new friend, Wesson. I know she will learn a lot! Tuesday, September 6, 2016. First Day of School 2016.

To promote awareness and offer education about a rare genetic skin condition called Epidermolysis Bullosa. A Guide for New Families. The Proof it works! The proof blended diet works! We started blended diet around age 2. At the time he has been on formula since birth. We had blood work on in the fall of 2012 and here were the results.

Saturday, May 9, 2015. I was eating my single slice cake from wal mart and crying into it. Friday, October 17, 2014. October is pregnancy and infant loss awareness month. This month mean so much to me because not only is it awareness for that, but the last week of October is EB awareness week. I want to talk about pregnancy and infant loss. When it comes to infant loss. As this will only make h.

Tripp lost his fight against EB on January. 14th 2012 in the arms of his loving mommy. He does however continue to shine in the thousands of lives that he has touched. It is my hope that this journey does not end here. That this is only the beginning. I am committed to help in the effort of spreading awareness, being a voice for these precious children and eventually finding a cure to EB.

This is just a Blog to babble random thoughts, ideas, feelings and stories of about our family. Saturday, January 15, 2011. Tuesday, January 4, 2011. Julia with the 1st and 2nd Grade class.

Bits and pieces from our fun-filled life together. Thursday, June 12, 2014. They had a fun year! Tuesday, June 10, 2014. Friday, May 30, 2014.

Life can be up and down and sometimes in between this is our day to day journey! Wednesday, August 28, 2013. Just some important information I would like to share. Wednesday, June 19, 2013.

Tuesday, May 19, 2015. This Is What A Sleep Study Looks Like. I really, really, really want to be done writing about sleep. Exhibit symptoms of periodic limb movement disorder. Okay, I should clarify. This is what the beginning. Of a sleep study looks like.