multiplehereditaryexostosis blogspot.com

Exostoses Multiplas Hereditárias

Ola a todos os blogueres. O meu nome é Zana tenho 36 anos e desde os 4 anos de idade que vivo com uma doença rara Exostoses Múltiplas Hereditárias MHE - multiple hereditary exostoses. Uma doença classificada como muito rara, 1 em cada 50.000 nascimentos. A ideia de construir este blog foi baseada na minha necessidade de procurar informação sobre a minha doena, tratamentos etc. Ora nos últimos dois anos tenho recebido alguns emails de pessoas afectadas pela mesma doença e com as duvidas que eu tinha.

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Exostoses Multiplas Hereditárias

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Ola a todos os blogueres. O meu nome é Zana tenho 36 anos e desde os 4 anos de idade que vivo com uma doença rara Exostoses Múltiplas Hereditárias MHE - multiple hereditary exostoses. Uma doença classificada como muito rara, 1 em cada 50.000 nascimentos. A ideia de construir este blog foi baseada na minha necessidade de procurar informação sobre a minha doena, tratamentos etc. Ora nos últimos dois anos tenho recebido alguns emails de pessoas afectadas pela mesma doença e com as duvidas que eu tinha.

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This web page multiplehereditaryexostosis.blogspot.com states the following, "O meu nome é Zana tenho 36 anos e desde os 4 anos de idade que vivo com uma doença rara Exostoses Múltiplas Hereditárias MHE - multiple hereditary exostoses." We saw that the webpage said " Uma doença classificada como muito rara, 1 em cada 50." It also said " A ideia de construir este blog foi baseada na minha necessidade de procurar informação sobre a minha doena, tratamentos etc. Ora nos últimos dois anos tenho recebido alguns emails de pessoas afectadas pela mesma doença e com as duvidas que eu tinha."

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