momonamissionblog blogspot.com

Mom on a Mission

Thoughts and insights from a mom, wife, and disability advocate -- I am mom to a daughter originally diagnosed with CHARGE syndrome but who currently is thought to have Kabuki syndrome. My husband and I also have one teen son.
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LINKS TO WEB SITE

Miss Lilys Pad

Monday, December 9, 2013. And she is deaf and hard of hearing but she is oral. She has terrible balance, but she walks with assistance. She knows her letters backwards and forwards and she knows her colors. She never took to sign language, but she has not forgotten her fingerspelling. She can finger spell faster than I can read it. Friday, December 10, 2010. We have had a busy summer! We are sending ou.

3 Little Bees

Thursday, January 7, 2010. If anyone has any insights or advice we would love to hear it. Wednesday, January 6, 2010. Thursday, December 3, 2009. Tuesday, December 1, 2009. Fingers crossed and anything else you want to cross will be greatly appreciated.

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Mom on a Mission

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Thoughts and insights from a mom, wife, and disability advocate -- I am mom to a daughter originally diagnosed with CHARGE syndrome but who currently is thought to have Kabuki syndrome. My husband and I also have one teen son.

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This web page momonamissionblog.blogspot.com states the following, "Thoughts and insights from a mom, wife, and disability advocate - I am mom to a daughter originally diagnosed with CHARGE syndrome but who currently is thought to have Kabuki syndrome." We saw that the webpage said " My husband and I also have one teen son." It also said " Join the Mom on a Mission Mailing List! Do you want to recieve each new column by E-mail as it is written? Join my E-mail distribution list by sending an E-mail request to momonamissionverizon. Would you like to reprint an article from Mom on a Mission?."

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Monday, April 9, 2012. Friday I received something in the mail it was my April Package Pen Pal. She sent me some pretty awesome stuff! I am made for VICTORY! If you would like to take part in PPP for next month, just let Jamie. This afternoon, after getting home from .

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Elle est vraiment trop GENIALE! Futuroscope avec eux.

MOMO LiViNG RooM

Monday, August 9, 2010. Sunday, July 19, 2009. Tuesday, May 12, 2009. Sunday, May 10, 2009.

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