mlsbks0422 blogspot.com

TREASURE YESTERDAY DREAM OF TOMORROW LIVE FOR TODAY

A blog about a families journey with Pontocerebellar Hypoplasia type 1A PCH1A with Spinal Muscular Atrophy SMA.
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Amazing Amelia

Thursday, November 15, 2012. So the first thing I need to do is give a huge Amelia update! Usually hanging in her room, particularly once we put the TV on for her, is all she wants to do. I have been able to experie.

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TREASURE YESTERDAY DREAM OF TOMORROW LIVE FOR TODAY

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A blog about a families journey with Pontocerebellar Hypoplasia type 1A PCH1A with Spinal Muscular Atrophy SMA.

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This web page mlsbks0422.blogspot.com states the following, "Our families journey with a life threatening neuro-muscular disease, from searching for a diagnosis to end of life challenges to the grief roller-coaster." We saw that the webpage said " PCH1A, a altercation of the VRK1 gene." It also said " I Believe To Kill a Mocking Bird by Becca Scher. Scientists Explain Parents Who Raise Successful Kids Do These 8 Things Differently."

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