marfangirl blogspot.com

Tall Like The Sunflowers

Tall Like The Sunflowers. Just a mom and a wife managing to keep it all together with a daughter and husband with Marfan Syndrome. Thursday, November 3, 2011. Yes, I will take it! G has been complaining the past few weeks about her legs. And her ankles. And then the other night, we were hanging out and I heard it - her hip cracks! Well, today is time. Well, tomorrow to be specific. Braces on her ankles? Who knows. Guess we will find out tomorrow. Wednesday, October 19, 2011. I have another blog - one whe.
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A Heart 4 Michael

Our friend Michael, has Marfan Syndrome. He was medivaced to the Mayo 600 miles from home, and is in cardiac icu. Mike needs a heart so he can continue being an awesome father to his 4 beautiful children. Wednesday, November 11, 2009. A Big Boy Tray for Michael. The nurses said he is doing AMAZING! Hugs and kisses to all.

Musings of a Marfan Mom

PLEASE UPDATE YOUR BLOG ROLLS AND READERS! THIS SITE HAS MOVED TO. Writes Downside Up and Outside In. In the post About Seeing Color. I just love Amber Strocel. About the love of mothers.

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Tall Like The Sunflowers

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Tall Like The Sunflowers. Just a mom and a wife managing to keep it all together with a daughter and husband with Marfan Syndrome. Thursday, November 3, 2011. Yes, I will take it! G has been complaining the past few weeks about her legs. And her ankles. And then the other night, we were hanging out and I heard it - her hip cracks! Well, today is time. Well, tomorrow to be specific. Braces on her ankles? Who knows. Guess we will find out tomorrow. Wednesday, October 19, 2011. I have another blog - one whe.

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This web page marfangirl.blogspot.com states the following, "Just a mom and a wife managing to keep it all together with a daughter and husband with Marfan Syndrome." We saw that the webpage said " Thursday, November 3, 2011." It also said " Yes, I will take it! G has been complaining the past few weeks about her legs. And then the other night, we were hanging out and I heard it - her hip cracks! Well, today is time. Well, tomorrow to be specific. Braces on her ankles? Who knows. Guess we will find out tomorrow. Wednesday, October 19, 2011. I have another blog - one whe."

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