A boy named Lennon

A boy named Lennon. Lennon was born with a rare metabolic genetic disorder called Urea cycle disorder - CPS Deficiency. He was diagnosed at the age of 4. In November 2008 he underwent not one but two liver transplants in order to save his life and could potentially face another transplant. This is his story. Yeah we all shine on, like the moon, and the stars, and the sun. John Lennon. The shortest stay in a long time. Posted by Petra Monaco. Lennon is well. He is sore still but well! I have moved and imp.

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LINKS TO WEB SITE

DragonKnits

My maternal grandmother taught me now to knit and crochet. She created many items from scratch, years ago, that you see in the stores today, like crocheted towel hangers, flowers, mail holders, etc. Monday, April 2, 2012.

Praying For Parker - A Blog About Special Needs Parenting

Fine and Gross Motor Activities. Fine and Gross Motor Activities. Signing, Friends and Shutterfly. A good friend is a true gift. They are there through the good time and the tough times. They tolerate your weird and encourage you to do your best.

A Tale of Two Cs

A Day in the Life. Tuesday, April 15, 2014. 2013 was a doozy! Our family has experienced multiple big. HUGE life changes in the course of a year. I got remarried to the holder of my heart and my children gained a stepfather and friend, we bought an awesome house and have put a lot of TLC into it to make it a home, and we welcomed a delightful baby boy into this crazy world! Seeing Coulby and Caroline hold Cellen and meet him for the first time was simply amazing! A huge milestone for.

Tale of One Quirky Amy

I am writing this blog to show patients and families of adult patients with urea cycle disorders that life can be fun even when coping with a UCD on a daily basis. Happiness is possible even while living with a UCD. Wednesday, June 15, 2011.

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A boy named Lennon

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A boy named Lennon. Lennon was born with a rare metabolic genetic disorder called Urea cycle disorder - CPS Deficiency. He was diagnosed at the age of 4. In November 2008 he underwent not one but two liver transplants in order to save his life and could potentially face another transplant. This is his story. Yeah we all shine on, like the moon, and the stars, and the sun. John Lennon. The shortest stay in a long time. Posted by Petra Monaco. Lennon is well. He is sore still but well! I have moved and imp.

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This web page lsucd.blogspot.com states the following, "Lennon was born with a rare metabolic genetic disorder called Urea cycle disorder - CPS Deficiency." We saw that the webpage said " He was diagnosed at the age of 4." It also said " In November 2008 he underwent not one but two liver transplants in order to save his life and could potentially face another transplant. Yeah we all shine on, like the moon, and the stars, and the sun. The shortest stay in a long time. He is sore still but well! I have moved and imp."

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