lovingluke1 blogspot.com

Loving Luke

My husband, Dan and I have 2 sons. Ben is 6 years old. Luke was born March 17, 2010. Luke has a rare genetic condition MPPH Megalencephaly Polymicrogyria Polydactyly Hydrocephalus Syndrome and epilepsy. This blog is to help keep friends and family updated and also to hopefully find other parentsfamilies who have experience with polymicrogyria and MPPH.

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LINKS TO WEB SITE

Caring for Callie

Wednesday, January 27, 2016. Happy 4th of July! We are still here! Callie is doing amazing and there is so much to share. Sunday, April 20, 2014.

Hunter Isaacson Family

Sunday, July 7, 2013. It has been 2 year since we have held you in our arms even though it feels sometimes just like yesterday or at times it feels so long ago. We just miss our boy! Hope everyone is doing well. XOXO, Nick and Samantha. Thursday, March 21, 2013. But would do it all over aga.

Caring 4 Calvin

Thursday, July 2, 2015. While You Are Sleeping I imagine. A hungry child that will jump out of bed and run into the kitchen and seat himself on the bench all ready for chocolate chip pancakes.

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Loving Luke

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My husband, Dan and I have 2 sons. Ben is 6 years old. Luke was born March 17, 2010. Luke has a rare genetic condition MPPH Megalencephaly Polymicrogyria Polydactyly Hydrocephalus Syndrome and epilepsy. This blog is to help keep friends and family updated and also to hopefully find other parentsfamilies who have experience with polymicrogyria and MPPH.

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This web page lovingluke1.blogspot.com states the following, "My husband, Dan and I have 2 sons." We saw that the webpage said " Ben is 6 years old." It also said " Luke was born March 17, 2010. Luke has a rare genetic condition MPPH Megalencephaly Polymicrogyria Polydactyly Hydrocephalus Syndrome and epilepsy. This blog is to help keep friends and family updated and also to hopefully find other parentsfamilies who have experience with polymicrogyria and MPPH. Sunday, December 13, 2015. Its never as easy as I think its going to be. We ended up taking the whole week plus a bonus weekend! While he was seizing."

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