livingwithhibm blogspot.com

Living with HIBM

What it39;s like to live with a progressive neuromuscular disease

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LINKS TO WEB SITE

Home - Neuromuscular Disease Foundation

Stay up to date - subscribe to our newsletter. While the recessive form of the disease is most common among Jews, Persians and the Japanese community, HIBM affects people around the world. There is currently no treatment or cure.

GNE Myopathy

Country specific rules and government support. Family, friend and caregivers. We envision a world where myopathies will not impede human aspirations, and where patients, and researchers collaborate on finding a cure for.

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PAGE TITLE

Living with HIBM

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What it39;s like to live with a progressive neuromuscular disease

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This web page livingwithhibm.blogspot.com states the following, "What its like to live with a progressive neuromuscular disease." We saw that the webpage said " Sunday, August 10, 2014." It also said " Please find me at my new home. Sunday, June 1, 2014. Its not like me to post two days in a row. I hesitated momentarily because so much of yesterdays post, especially the piece from Gabrielle, was about being able to share the difficult feelings without feeling obligated to wrap them up with a bow. But I kind of cant help myself. It just so happens that last night was such an incredible gift. How am I to cope?."

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