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September 13, 2017 by cfssufferer. Mestinon, AKA Pyridostigmine, is an acetylcholinesterase inhibitor typically used to treat myasthenia gravis- a neuromuscular disease. It is a drug that can markedly reduce fatigue and enable patients to exercise in general disorders. Has included Mestinon in a list encompassing his favourite drugs for ME patients.
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A blog about the experience of living with CLIPPERS - Chronic Lymphocytic Inflammation with Pontine Perivascular Enhancement Responsive to Steroids. Sunday, 21 January 2018. A reminder of warmer times.
We will all learn to live with this illness, Chronic Myelogenous Leukemia, that is in one of us. I hope to share the journey with others and to make a difference along the way. Tuesday, March 06, 2018. And then I found a couple of groups online filled with others with CML. At first I thought it was a typo when I read that some had been alive, and going strong, 10 and 12 years after diagnosis! I am more than happy, more than utterly grateful. And so I find myself in a very happy place.