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Following the day to day happenings of a little girl living with a mitochondrial disorder. Averie is a crazy, beautiful, smart energetic 7 year old who keeps everyone on their toes! Monday, November 14, 2011. Pictures of your balloon release are welcome 3. Even now she is re.
I am expecting some bitter-sweet times ahead as Will gets ready to launch into this next phase. Update on the drug trial.
Living with ALS by Tom Swift. A Few Words In Closing. This is my last article for the St. I developed pneumonia in early January and I did not recover fully. By the time you read this, I may be dead. I realize that is blunt, but I want to be clear. Here are a few thoughts before I go. I am not afraid of dying because I am in hospice care. The caring and professional staff will make sure I die in comfort and dignity.
A new annual competition for short films about dementia. Announcing Winners of 2016 Competition. Deadline Extended for 2016 Competition. Announcing Winners of 2015 Competition.