littlemisskeni blogspot.com

Little Miss

Kennedy Grace Kulas was born 6811 1010 am. At about 5 days old she was dignosed with CHARGE Syndrome and Dandy Walker Malformation. She is a blessing to our family. We hope you join us on this wonderful road we are taking! Denstined for Greatness; But pacing myself. Thursday, January 16, 2014. I cant get enough. I just cant enough of how cute my kids are! You cant watch the videos from you iPhoneiPad through the emails - but they are worth logging on to an old fashion desktop. Lol. I thought.

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Ronan Reflections

Our little boy arrived in August 2011. Soon after his birth, we found out he had a congenital heart defect along with several other issues. He was later diagnosed with CHARGE Syndrome. We are navigating the world of syndromes, genetics, heart defects, and hearing loss. all the while watching our little boy amaze everyone. Wednesday, October 16, 2013. When do expectations become unrealistic? It was just too overwhelming. Having fun at PT! As part of that, we want him to walk. We want him to talk.

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PAGE TITLE

Little Miss

DESCRIPTION

Kennedy Grace Kulas was born 6811 1010 am. At about 5 days old she was dignosed with CHARGE Syndrome and Dandy Walker Malformation. She is a blessing to our family. We hope you join us on this wonderful road we are taking! Denstined for Greatness; But pacing myself. Thursday, January 16, 2014. I cant get enough. I just cant enough of how cute my kids are! You cant watch the videos from you iPhoneiPad through the emails - but they are worth logging on to an old fashion desktop. Lol. I thought.

CONTENT

This web page littlemisskeni.blogspot.com states the following, "Kennedy Grace Kulas was born 6811 1010 am." We saw that the webpage said " At about 5 days old she was dignosed with CHARGE Syndrome and Dandy Walker Malformation." It also said " She is a blessing to our family. We hope you join us on this wonderful road we are taking! Denstined for Greatness; But pacing myself. Thursday, January 16, 2014. I just cant enough of how cute my kids are! You cant watch the videos from you iPhoneiPad through the emails - but they are worth logging on to an old fashion desktop."

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