lifewithicthyosis blogspot.com

Life with Ichthyosis

My name is John and I have Lamellar ichthyosis, also known as ichthyosis lammellaris and nonbullous congenital ichthyosis, is a rare inherited skin disorder, affecting around 1 in 600,000 people. I am also a father, SQL Server DBA and a referee for roller derby. I do not let my skin condition define me but I thought it would be good to post some of my life experiences here to share. Monday, August 5, 2013. Friday, May 3, 2013. Knee Pain and shots. Monday, November 19, 2012. Tuesday, September 25, 2012.
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Fishy Skin Living with Ichthyosis Vulgaris

Friday, May 10, 2013. Monday, November 5, 2012. Glad to hear about .

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Life with Ichthyosis

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My name is John and I have Lamellar ichthyosis, also known as ichthyosis lammellaris and nonbullous congenital ichthyosis, is a rare inherited skin disorder, affecting around 1 in 600,000 people. I am also a father, SQL Server DBA and a referee for roller derby. I do not let my skin condition define me but I thought it would be good to post some of my life experiences here to share. Monday, August 5, 2013. Friday, May 3, 2013. Knee Pain and shots. Monday, November 19, 2012. Tuesday, September 25, 2012.

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This web page lifewithicthyosis.blogspot.com states the following, "My name is John and I have Lamellar ichthyosis, also known as ichthyosis lammellaris and nonbullous congenital ichthyosis, is a rare inherited skin disorder, affecting around 1 in 600,000 people." We saw that the webpage said " I am also a father, SQL Server DBA and a referee for roller derby." It also said " I do not let my skin condition define me but I thought it would be good to post some of my life experiences here to share. Monday, August 5, 2013. Friday, May 3, 2013. Monday, November 19, 2012. Tuesday, September 25, 2012."

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