lebenmitdercystinose blogspot.com

Meine Erfahrungen aus einem Leben mit der Cystinose

Erfahrungen mit der infantilen Cystinose

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PAGE TITLE

Meine Erfahrungen aus einem Leben mit der Cystinose

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Erfahrungen mit der infantilen Cystinose

CONTENT

This web page lebenmitdercystinose.blogspot.com states the following, "Weil Cystinose eine sehr seltene Krankheit ist, mit ca." We saw that the webpage said " 2000 lebenden Menschen, meistens Kindern weltweit möchte ich einen Einblick geben, wie das Leben eines Dinosaueriers47 Jahre mit Cystinose so spielen kann." It also said " In Deutschland leben etwa 80 bis 120 Familien mit einem KindMenschen, der Cystinose hat. Im halben Jahr soll ich deshalb, wegen dem MRT auf die Station. Mal sehen, vielleicht kann ich die Kinderdialyse auch wieder besuchen. Diesen Post per E-Mail versenden."

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