joyofjacob blogspot.com

The Joy of Jacob

Perservering Against Niemann-Pick Disease Sept. 20, 2010 - Nov. 15, 2012

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LINKS TO WEB SITE

The Quinn Madeleine Foundation - Awareness for Hope. Memories for Life. Niemann-Pick Type A. Quinn linzer

Support Quinn Madeleine with AmazonSmile. Click here to get started. Get your gear here, and join the movement. Feel The Breeze 5K and Fun Run. To the full extent of the law.

linzer, party of five

Saturday, August 9, 2014. Many hours of most days I am able to seem normal. There are the stolen moments during those days, when seeming, acting and feeling normal is simply not possible; moments which are generally contained to my alone time.

All things fabulous and not about motherhood

When I shared with all of you my fitness goals. What the hell was I thinking? Unbeknownst to my overworked sports bra, I am no where near my weight loss goal of 12. But, I am not sad or disappointed. All you arm flappers out there know what I am talking about. Thank you, very much! Every Monday, Wednesday, .

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The Joy of Jacob

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Perservering Against Niemann-Pick Disease Sept. 20, 2010 - Nov. 15, 2012

CONTENT

This web page joyofjacob.blogspot.com states the following, "Perservering Against Niemann-Pick Disease Sept." We saw that the webpage said " 20, 2010 - Nov." It also said " We originally created this blog to keep family and friends updated about our little man Jacob, who was diagnosed in the summer of 2011 with a rare, life-limiting genetic disease called Niemann-Pick type AB. Jacob earned his angel wings on November 15, 2012, but remains our daily inspiration and constant reminder that we must live in the moment and fill each day with JOY, LAUGHTER and an abundance of LOVE."

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