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But we can live with it, fight it, and maybe even defeat it. I hope it helps a patient, a caregiver or a loved one. The blog you see below is the most recent and you want to read it last. Tuesday, June 7, 2011.
But there can still be fun and good times with it. Here are some of my happy times. Sunday, August 29, 2010. They brought me back to my Church. Hosting visitors with my wife Trrrr. Well, mostly watching her host. Visits from my son AJ. We had never done that before.
These are some of the things I have learned. Tuesday, April 7, 2009. This was first told to me by my father more than 30 years ago. Also taught to me by my father. How to nurture someone who totally depends on you. Something I wish I had learned before it was time to raise my children. It took my dog Oscar to teach me. What it feels like to have someone love you unconditionally.
People Who Are Praying for Me. Thursday, March 24, 2011. Andrea Tibaldo and her parents Frank and Julie, long time friends. Andrea, an ex-colleague of my ex-wife. Andy and Adele Hahn, old friends. Anne, my sister and her husband Bob. Anonymous, the child of another patient who read my blog. Becky LaSalle, wife of Rob, another EC patient.
There are many sad moments. Here are some of mine. Friday, January 30, 2009. Hearing the diagnosis and seeing my wife. It hit her when it hit me. Her tears made it hard. Seeing Heather cry and seeing AJ try not to cry. Hearing the diagnosis and seeing my wife - It hi.