Friday, April 13, 2012. Grandma Kim and Ava at a volleyball game. Are they your favorite shapes? I hope to hear from all of you. Happy Spring! Ava at Red Barn Photography. Grandma Friend and Ava on Easter 2012. Ava after her Spring Concert performance at Oakview Elementary. Friday, April 13, 2012. Wednesday, January 19, 2011. Her health is problems have all but disappeared, thank goodness.

This is a blog dedicated to my beautiful daughters, Ella and Emerson. Emerson was diagnosed with a rare, genetic disorder called Williams Syndrome when she was 5 months old. Just one of those days. Good Morning, Sunshine! WS Awareness Event 2008. Monday, June 08, 2009. Just one of those days.

Growing Up With Emma and Tatum. Wednesday, October 19, 2011. Pictures from Lisa- -Disney- -some anyway. Click here to view these pictures larger. Wednesday, May 18, 2011. It really has been a while. Emma is finishing up 2nd grade and for the most part loving it, she has issues staying focus. Going to love and thrive with. We had our third Walk this year for WS Awareness the fol.

Monday, July 5, 2010. So its come to my attention that I havnt blogged in nearly a year. Wow talk about time flying. I think overall a lack of blogging is a good sign that I have been in a happier place, the kids have been healthy and happy, blogging also is a much harder task when only having use of an I phone for the best part of the year too as my home computer finally gave up and Hubby needs the lap top at work. So, what has been happening? Liam is doing well at school and has lots of friends.

When Josh died, the person I was died with him. Painful, gutwrenching, full of angst though it may be, I am on it with the intent to grow and learn, and as always, love my son. Wednesday, December 17, 2014. Random stuff I need to tell you. Six years since you left me. So, how do I feel? I cry, inside and out. Now, yesterday, tomorrow. There is no end to the tears in my soul.

Friday, September 03, 2010. That decision led to our appointment with Dr. Pober, WS geneticist expert extraordinaire, who examined the boy. She acknowledged his consistent progress, albeit slow; his good health, and our good attitudes. Then she ordered the tests. Two weeks later, we have been hit. How far he has come. yet now I know for sure he is 100 genes less. So easy to slip into that black hole cycle. but how can I possibly, seeing his progress? Just another deep breath, I am sure this is not the la.