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Este blog ha sido creado con la intención de recoger toda la información importante que se va generando sobre las enfermedades raras en España, y ofrecerla tanto a los afectados como a las pequeñas asociaciones que muchas veces no disponen de medios ni apoyo externo. Legislación y planes de las CCAA. Unidades que tratan enfermedades raras. Películas, libros, relatos y cuentos, artículos. Miércoles, 10 de junio de 2015. una, otra y otra vez.
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