fragilextraordinaryfamily blogspot.com

Fragile X-Traordinary

I am the mother of two wonderful children, one of whom has Fragile X Syndrome. This is my family39;s journey.

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LINKS TO WEB SITE

Fragile X Awareness Fragile X AwarenessFragile X Awareness Spreading Awareness of Fragile X Syndrome and Associated Conditions

Spreading Awareness of Fragile X Syndrome and Associated Conditions. Our site aims to spread awareness of Fragile X Syndrome and the related carrier conditions, FXTAS and FXPOI. We offer information on where to find out more plus what support options are available worldwide.

Glores Around The Parks

Sunday, November 15, 2015. Well, the best laid plans and all that. I had such high hopes of competing NaBloPoMo this year, but life seems to be getting in the way again. The biggest thing that has happened is that Darcy turned NINE! Wednesday, November 11, 2015. See those ripples in the rock? It seems like this .

Fragile X Association of Utah

Cycle Ability is holding their 2nd Annual Bicycle Camp and registration is now open! Spots are limited, so register early. Programs like this are available around the country, but now we have one here in Utah. These programs are amazing! For a child with a developmental disability, learning to ride a two-wheeled bike gives the child a real sense of accomplishment and independence.

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Fragile X-Traordinary

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I am the mother of two wonderful children, one of whom has Fragile X Syndrome. This is my family39;s journey.

CONTENT

This web page fragilextraordinaryfamily.blogspot.com states the following, "I am the mother of two wonderful children, one of whom has Fragile X Syndrome." We saw that the webpage said " This is my familys journey." It also said " Thursday, February 10, 2011. Im not even going to try to catch up. Unfortunately, thats what I always say. But, theres no day like today to start being a good blogger. On another good note, Pup had his first speech therapy session without any need for bouncing or swinging. He was attentive the whole hour! Tuesday, January 4, 2011. ME So, people can st."

SEEK SIMILAR DOMAINS

Norton Family Fragile X Story

from despair to hope to miracles. this is a true story of everything happening for a reason. Friday, May 4, 2007.

Our Fragile X World

Monday, August 16, 2010. Help us help our kids. Fragile X researchers are so close to developing drugs to help our kids. We live with this every day and pray that the researchers keep trying, that the FDA will approve, and that our kids will get the help they need. For Caroline social communication is very hard. She has sensory processing difficul.

La Fragilidad de los Retiros

En el retiro o manuscrito de la postal se registraron el asombro y el afecto de cada viajero. No puedo aferrarme al pasado sin que la muerte me trace una y otra vez con sus coordenadas de silencio. No puedo proyectarme al futuro sin que la duda me cruce con su trama de posibles alternativas. La casa ya está desmontada, todas mis pertenencias embaladas y listas para la mudanza que busca un destino opuesto a éstas serranías, un horizonte mar.

un sueño donde el silencio es oro

A metáfora da minha vida.