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Spreading Awareness of Fragile X Syndrome and Associated Conditions. Our site aims to spread awareness of Fragile X Syndrome and the related carrier conditions, FXTAS and FXPOI. We offer information on where to find out more plus what support options are available worldwide.
Sunday, November 15, 2015. Well, the best laid plans and all that. I had such high hopes of competing NaBloPoMo this year, but life seems to be getting in the way again. The biggest thing that has happened is that Darcy turned NINE! Wednesday, November 11, 2015. See those ripples in the rock? It seems like this .
Cycle Ability is holding their 2nd Annual Bicycle Camp and registration is now open! Spots are limited, so register early. Programs like this are available around the country, but now we have one here in Utah. These programs are amazing! For a child with a developmental disability, learning to ride a two-wheeled bike gives the child a real sense of accomplishment and independence.
from despair to hope to miracles. this is a true story of everything happening for a reason. Friday, May 4, 2007.
Monday, August 16, 2010. Help us help our kids. Fragile X researchers are so close to developing drugs to help our kids. We live with this every day and pray that the researchers keep trying, that the FDA will approve, and that our kids will get the help they need. For Caroline social communication is very hard. She has sensory processing difficul.
En el retiro o manuscrito de la postal se registraron el asombro y el afecto de cada viajero. No puedo aferrarme al pasado sin que la muerte me trace una y otra vez con sus coordenadas de silencio. No puedo proyectarme al futuro sin que la duda me cruce con su trama de posibles alternativas. La casa ya está desmontada, todas mis pertenencias embaladas y listas para la mudanza que busca un destino opuesto a éstas serranías, un horizonte mar.
A metáfora da minha vida.