My name is Kaitlyn Anne and I have Spinal Muscular Atrophy Type 1. Children born with SMA 1 gradually lose strength in their nervous systems and die, usually by the age of two. There is no known cure or long-term treatment. SMA not only affects the muscles that help me move, but it also affects those that allow me to breathe, swallow and clear my airway. Tuesday, August 21, 2012. So what can we do about this? Our other biggest battle h.

Its not by what you have that makes you happy, but by who is in your life that truly makes you happy. Saturday, April 04, 2015. 10 years old and oh so cute! Links to this post. Monday, March 30, 2015. Almost 10 just a few more days. We recently bought Sky a new van. So look out spring and summer were coming for YA! Links to this post.

Tuesday, January 17, 2012. Where do I begin? A couple days after she died her nurse called me. They said no matter what she would have died soon anyway. Even hearing that I still blame myself. I go over that day all the time and it still hurts. Thursday, June 9, 2011. August 29, 2007 June 06, 2011.

Monday, October 10, 2011. Birthday and walk around 5 years old. These were my goals for Kai. Kai was going to crawl and walk. I was sure of it. He was just going to be farther behind the curve than most kids. We began weekly therapy visits and I worked with Kai every day I could.

Поздравляю товарищей по сообществу с наступившим уже новым годом! Традиционно - желаю, чтобы все любимое в этом году у вас получилось собрать вместе не только на картинке. И наилучшим и наиприятнейшим для вас образом.

A little life transforming many lives. Sunday, November 27, 2016. Eye stye go away . Danielle had this eye stye in her left eye for months. At one point of time both eye got infected. Few week later we notice the eye stye was gone. keeping finger cross that it will not come back. EYE STYE DONT COME BACK! Links to this post. Friday, September 16, 2016.

Thursday, September 11, 2014. I go in waves you could say. My daughter graduated from High School. I am very proud of her and the accomplishments we achieved while in MHS. She has grown into a very beautiful, smart and caring woman! Fast forward to today. Time will tell what the future holds for us. Wednesday, March 12, 2014. Where is YOUR mind? .

A test of faith and courage. Jan 2014 - 10 mths old. The first time C visited the Zoo was 1. Too young to remember anything. It was more of a must-visit-the-zoo-before-he-turns-one affair. Last Saturday, we brought C there again. It was meant to be an educational trip. We thought he would be happy to see and name the animals he came to know through books and YouTube. It was also one of his very few trips out of the house in recent months. Jun 2015 - 2 yrs old.

Monday, January 9, 2017. You are always in a hurry. Monday, January 2, 2017. Christmas break was filled with lots of fun. So sad it is over. Fun to not have anywhere to go and just do whatever we want. Well, almost the fam. This is Nick at Boulton. Then we decided to go to Texas Roadhouse after sledding. Nothing like the Awesome Blossom. Nick caught that T shirt and Jack caught that Stars Ball. She did such a great job. Here we all are! Where to begin.