Dedicated to accelerating biotech innovation for rare disease treatments through science-driven public policy. We are a science-based advocacy organization that works to bring lifesaving treatments to the 30 million Americans with rare diseases. We focus on educating and activating the patient community to ensure they are heard by policy makers in government and by industry developing the treatments. Affecting 1 in 10 Americans. Have no FDA approved treatments. Sign Up for Our Newsletter.

Every Life has a Story to Tell. And this is me telling mine. Who of you by worrying can add a single hour to his life? Since you cannot do this very little thing, why do you worry about the rest? Some topics I cover. Tuesday, June 6, 2017.

A tell all of truth, experience, goals, dreams and fears. Wednesday, December 4, 2013. Truth or Dare or infectious wound. Last nights dream makes me think that God is telling me that I am failing at my mission, that although there is potential for change from the life of Elijah, I am failing at making that happen. Did I ever get to snuggle, feed and feel the soft skin of that precious little baby? When I was raped in the facility that I now live in, and hav.

The Shire, Hobbiton by Daniel Kordan. Indy Theme by Safe As Milk.

Every life needs music! 900 Harvey, McAllen, TX 78501. Subscribe to our mailing list. Corpus Christi, TX 78411. Subscribe to our mailing list.