danicaboni2 blogspot.com

Danica Boni - An Adv with Hurlers Syndrome P.2

Dani has a very rare genetic disorder call Hurler39;s Syndrome or MPS I. Its part of a group of storage disorders called Lysosomal Storage Disorders. You can find out more information at MPSSociety.org You can see the first part of her journey on danicaboni.blogspot.com. This is the beginning of a new journey.

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Danica Boni - An Adv with Hurlers Syndrome P.2

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Dani has a very rare genetic disorder call Hurler39;s Syndrome or MPS I. Its part of a group of storage disorders called Lysosomal Storage Disorders. You can find out more information at MPSSociety.org You can see the first part of her journey on danicaboni.blogspot.com. This is the beginning of a new journey.

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This web page danicaboni2.blogspot.com states the following, "Dani has a very rare genetic disorder call Hurlers Syndrome or MPS I." We saw that the webpage said " Its part of a group of storage disorders called Lysosomal Storage Disorders." It also said " You can find out more information at MPSSociety. org You can see the first part of her journey on danicaboni. This is the beginning of a new journey. Wednesday, August 29, 2012. Orthopedics Appt 08292012 - The pictures above are a combination of MPS Awareness Day 2012, Dani wearing her glasses, and first day of school. Friday, February 24, 2012."

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