compatiblewithjoy-trisomy18 blogspot.com

Compatible With Joy-Trisomy18

A journey about Trisomy 18 with a medically fragile baby, trached, vent dependent, g-tube fed, loved immensely. Living and loving life Trisomy style.

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LINKS TO WEB SITE

The Norton Family

Friday, January 17, 2014. Six months ago today our hearts literally broke. Someday I will get to writing about that whole experience, someday. Today, I miss Paxton. With every cell of my body. I ache to hold his body and kiss his cheeks, ear, on down to his neck; stroke his hair; and feel his hand on my face. I miss seeing him wake up so happy and look towards the window, as if it would tell him what kind of a day it would be. It was so fun for me, too! He was so perfect and peaceful and.

Home of the Hones

Tuesday, February 24, 2015. The Day I Accidentally Became a Runner. I have never been a runner. I have always dreaded it in fact. Even in high school, when we had to run a mile and a half, I would just do it as fast as I could just to get it over with, but I despised that day in gym class. I ran my heart out and felt great at the finish line. After that, I knew I would want to do another one. Over the next couple of days, my body healed and my mind ha.

Dancing in the Rain

Life is not about waiting for the storm to pass. Saturday, March 18, 2017. SOFT is a tremendous resou.

Ellie Louise

So thankful for being able to share this with you all. The service was very meaningful for us and we were privileged that Ellie was able to share the promise of Heaven with our community. I hope that this will bless many. Today it has been two months since sweet Ellie flew into the arms of Jesus. Thank you to all of you that came to t.

Snollygoster Roster

Thursday, June 18, 2015. Flaming Gorge with the Nielsens and Sandullis - August 21-24, 2014. So facsinating to see the place where my ancestor Sally of the Shoshone met and married French trapper Jean Baptiste. Turns out there was a whole village of such couples near this fort.

Little Js Journey

Saturday, August 1, 2015. Why Hospital Stays are Hard. If you are reading this, I love you. I know our journey is up and down and all over the place, and you are still here cheering us on. We have no guys! .

This Bugs Life

First, Do No What? 160;Sunday, June 28, 2015. Only because I believe the spin on this issue needs to stop, and stop NOW before it gets embarrassing. Possibly of most concern is that some families are now opting out of proven treatments, such as surgery or the ketogenic diet, or newer antiseizure medications because they have put all their hope in CBD oils.

A Time For Grace

Our baby girl has been diagnosed with Trisomy 18. This is the story of our journey with her. Wednesday, October 30, 2013. It was about 2 years ago this time that I began to receive an ongoing series of reports from our doctors of problems with the pregnancy. It was just some thoughts about Halloween and how it stirred up.

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Compatible With Joy-Trisomy18

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A journey about Trisomy 18 with a medically fragile baby, trached, vent dependent, g-tube fed, loved immensely. Living and loving life Trisomy style.

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This web page compatiblewithjoy-trisomy18.blogspot.com states the following, "What Is Trisomy 18? Inspirations and Other Thoughts." We saw that the webpage said " Correcting Aarons Rocker Bottom Feet." It also said " Supports for Families Facing a Trisomy Diagnosis. Saturday, March 17, 2018. Kinda feeling like Annie right now, Tomorrow, tomorrow, I love ya, tomorrow, youre only always? A day away. Yep, not going home today. He managed to stay on the home vent yesterday, but spent most of his time between 13 and 15 liters. Not gonna work for discharge. So maybe, maybe tomorrow? So we continue w."

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