Tuesday, 31 March 2015. Scientists find clues into cognitive dysfunction in chronic fatigue syndrome. Saturday, 28 February 2015.

The job of Patient Advocate came upon me uninvited. I did not apply for this job, nor did I have any qualifications for it. I am a sculptor, not a doctor or a researcher. LOOKING AT LYME DISEASE - MSIDS. BREAKTHROUGH IN FRANCE FOR TREATING CHRONIC LYME PATIENTS.

THE ROAD TO RECOVERY . Over the course of five years, both Ms. Gellman married and adopted a child. Verrillo moved to New England with her two children. Maya went back to school, and Ms. Verrillo was able to resume teaching. Verrillo was left to continue the work on her own.

Verrillo moved to England, where she performed in the Oxford Symphony Orchestra. On her return to the U. she attended New England Conservatory. She finished her undergraduate education at Tufts, where she majored in History. Ms Verrillo has written three middle reader fantasies, the.

Life through the lens of an ME sufferer struggling to get treatment. The History of my Medical Appointments 2014. As I type this I am still in a state of shock and bewilderment. I feel hopeless and I am a fighter. I am strong, I do not crumble under the cruelty of the NHS but this time I feel am defeated and I have no one else to turn to but America. Is this the stigma of having a diagnosis of M.

Europe gets early access to Ampligen. Phase II Cyclophosphamide trial for ME gets under way. Phase II Cyclophosphamide trial for ME gets under way. Approval sought for Ampligen trials in Australia.

Woodcock with additional information regarding the distressing new price for Ampligen. I submitted that message together with my message to Dr. Woodcock from two days ago. You can read my .

Saturday, December 6, 2014. A ten minute writing practice. Perhaps because I for many years saw myself as damaged, broken after almost being murdered, my chest cracked open, my heart and sliced artery in my throat exposed. Is that it? Did I need that clown to to heal me? Monday, October 28, 2013. Silence is an Unacceptable Answer. Against our wishes and after reading our arduo.

Monday, May 11, 2015. Effort to unite bloggers and spread awareness. After 12 years of ME and numerous clean MRIs I began to develop new clusters of symptoms last year. I thought it was simply a new ME decline, the beginning of a long slide into oblivion, into very severe ME. It was encouraging, then, when.

This is about me and M. Sunday, 8 January 2017. Bonne Année et meilleurs voeux pour 2017. For me personally, 2016 brought a lot of changes in my life.