caleb-paul-hlebiczki blogspot.com

Caleb Paul Hlebiczki

Caleb was born with two rare syndromes, CHARGE and DiGeorge. Caleb is the 6th person in the world born with both syndromes. CHARGE is a multisystem-effecting syndrome which can cause several severe anomolies. DiGeorge prevented Caleb from developing an immune system. He spent over a year straight in the hospital, had multiple surgeries with a possibility of having more in the future. This blog details his heroic journey and story. God Bless Caleb!!

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Caleb Hlebiczki

Tuesday, October 24, 2006. Friday, October 20, 2006. Caleb went for his Echocardiogram on Wednesday. We will not get the results back for awhile. Both sides of the palate are touching and his nostril is lifting up. He is such a cutie! Tuesday, October 17, 2006.

The Adventures of Kennedy

Chronicling the adventures of one amazing, funny, sweet, outrageous young lady, who happens to have CHARGE syndrome! Sunday, January 3, 2016. So this is happening in a few months. In June of this year.

The Life of Evan.

Sunday, April 25, 2010. Hi everyone- this is Evan. Come see the play house my daddy has been building for me. The swings have been up since last summer. The house and steps are new. Since this picture was taken, windows have been added. All registered and ready to go.

the mighty max update

Monday, February 9, 2015. Max is really interested in his schedule recently. Very exciting! This weekend Max decided that since Gina had stopped by, they should go and visit their friend Aspasia. and sure enough that is where he took Gina on their walk. Tuesday, January 13, 2015. Healthy, yummy and easy! Amy and mighty max.

The Jelly Chronicles

This morning pus started to leak out from under your dressing. Bailey held your oxygen treatments, had the dressing changed, and wanted . We arent going home anytime in the near future. The first few dressing changes it didnt look lik. Mason is in Surgery! I really did try.

3 Little Bees

Thursday, January 7, 2010. If anyone has any insights or advice we would love to hear it. Wednesday, January 6, 2010. Thursday, December 3, 2009. Tuesday, December 1, 2009. Fingers crossed and anything else you want to cross will be greatly appreciated.

Camryn Jayde Hlebiczki

Tuesday, December 9, 2014. I just wanted to post a small update. I wanted to share a photo with you. We wanted to wish you and years a very Merry Christmas! God Bless you all! God Bless Caleb and Camryn! Wednesday, November 5, 2014. Sorry for the delay in posts. Camryn is growing like a weed and is such an amazing little helper. She has such an amazing personality. God Bless you all! Another.

Haleigh Rose

Sunday, December 27, 2009. Haleigh really embraced the Christmas story and had fun learning about why we celebrate Christmas and that the presents are fun, but they are not the main part of the reason why we celebrate Christmas. We went to a church service where younger kids dress. Monday, October 19, 2009. So we have been pretty busy and got behind! Football season started and we have been running around like crazy! We also got some great news. Haleigh Rose is going to be a big sister! Here are a few vid.

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Caleb Paul Hlebiczki

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Caleb was born with two rare syndromes, CHARGE and DiGeorge. Caleb is the 6th person in the world born with both syndromes. CHARGE is a multisystem-effecting syndrome which can cause several severe anomolies. DiGeorge prevented Caleb from developing an immune system. He spent over a year straight in the hospital, had multiple surgeries with a possibility of having more in the future. This blog details his heroic journey and story. God Bless Caleb!!

CONTENT

This web page caleb-paul-hlebiczki.blogspot.com states the following, "Ephesians 320 Now to him who is able to do immeasurably more than all we ask or imagine, according to his power that is at work within us." We saw that the webpage said " Wednesday, February 18, 2015." It also said " Well its that time of the year. Clinic had a clinic day today. He had appointments with orthodontics, cleftcraniofacial, and cardiology. So here are the updates. I will update as soon as we know more. God Bless you all! God Bless Caleb and Camryn! Monday, December 22, 2014. Caleb was on the news."

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