2 Bostons, 1 Preemie, 65 Roses
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Friday, February 8, 2013. Tuesday, December 11, 2012. No news is good news. I know it has been a while since I have updated. Sorry, Life has been busy, but good. Everyone is doing great and I am so happy to say that. Things are so different from a year ago. At that time we were in and out the hospital and at the drs offices every day trying to figure out what was going on with Sarah. Today she is a beautiful, smart, active and HEALTHY 17 month old. Friday, October 26, 2012.
One IVF, Two Embryos, Two Heartbeats, Two Micro Preemies turned Toddlers. Faith, Courage and everything in between. Wednesday, April 29, 2015. Addison - 4 year old update. Good news is, we are and we are thriving. Has she made huge strides? Has she narrowed the gap between where she is and where she should be? After being on the wait lis.
Here we are on that hospital flow again. Mainly to check for a shunt malfunction.
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Tuesday, May 12, 2015. Great News from the FDA! This afternoon, the FDA Advisory Panel recommended approval of the latest CF corrector drug, formerly VX-809lumicaftor combined with Kalydeco, now known by its official brand name, Orkambi! The final vote was 12 yes, 1 no. This is not. At the same time, Im rejoicing for my many friends whose loved ones will benefit from Orkambi, and any future correctors that are better! Id be lying if I said I wasnt tense today. I knew the panel recommendations we.CONTENT
This web page bostonsandapreemie.blogspot.com states the following, "Tuesday, May 12, 2015." We saw that the webpage said " Great News from the FDA! This afternoon, the FDA Advisory Panel recommended approval of the latest CF corrector drug, formerly VX-809lumicaftor combined with Kalydeco, now known by its official brand name, Orkambi! The final vote was 12 yes, 1 no." It also said " At the same time, Im rejoicing for my many friends whose loved ones will benefit from Orkambi, and any future correctors that are better! Id be lying if I said I wasnt tense today. I knew the panel recommendations we."SEEK SIMILAR DOMAINS
Wednesday, September 30, 2009. Patti Meador-Bostons and Boxers by Design. Thursday, September 17, 2009. Patti Meador-Bostons and Boxers by Design. Saturday, August 29, 2009. Patti Meador-Bostons and Boxers by Design.
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