one breath at a time. Monday, June 18, 2012. When patient info becomes gossip on the tennis court. It was recently brought to my attention that a CF doctor revealed to a mutual family friend that he had seen me before.

Monday, February 6, 2012. New Year, New Heavier Ben. The day of surgery he weighed 30. He is packing on the pounds and that makes for a happy Mom and Dad. He did well after surgery and was back to his spitfire self very quickly! We only had to spent one night in the hospital. Mott is very nice and it was great to have our own room. In December, we flew to Hawaii, to see my brother graduate from U of H. Ben had a great time and he did well on the long flight there and back! The speec.

The celebrations, exclamations, observations and ruminations of a twenty-something on a quest to figure out this adulthood thing, make her life matter and have some fun along the way. and do it all with Cystic Fibrosis. Friday, May 11, 2012. Awareness is pretty sweet, too.

Monday, May 10, 2010. Yes its official, I am a terrible mommy blogger. Life has been so different and crazy, which I expected I just feel so bad I have not kept everyone updated. Nick, Alisha and Nicolas. Saturday, March 20, 2010. If I miss a day.

One day at a time . My previous post was me freaking out a bit. If there truly is in fact no bacteria, then we have to look into this further. Post tx is very different than pre tx. I just need to learn patience. I will get through this.

Tuesday, November 30, 2010. No sooner did we finish giving thanks did Lucy have a clinic day. Lucy has had a steady rattling cough with no other symptoms for about two weeks now.

Wednesday, March 13, 2013. WEDNESDAY, MARCH 13, 2013. Christopher returned to work at Audible in November 2010, at first part-time, transitioning to full-time effort through the next months. In February 2011, he moved into his own apartment in Jersey City, a 3-flight walk-up, walking distance to the PATH train, restaurants and friends. During the summer of 2011 complications began to occur.

Making It Up As I Go Along. It makes no difference how deeply seated may be the trouble, how hopeless the outlook how muddled the tangle, how great the mistake. A sufficient realization of love will dissolve it all. Tuesday, November 25, 2014. But, yesterday, I remembered I have a flashlight. So, I flipped it on and crawled out from under the bed. Thursday, September 11, 2014. Then I met another lady in CF clinic. Danielle was two, and I was pregnant with Sar.

Ive been living with these beautiful gifted lungs for 18 months. More than living, thriving! 0160; My creativity has recently awakened and its as if Im making up for lost time. I want to paint, sew and build. For a couple years prior to transplant I just didnt have the energy to do much more than exist. Im so trilled to have energy and strength to do the things I love.